2016 Conference

Date: Saturday, 17 September – Sunday, 18 September 2016

Location: Mantra Legend Hotel Surfers Paradise, Queensland

Program: Download the 2016 TAMS Mini Conference Program.

Book online today to attend the 2016 TAMS Mini Conference, to be held in sunny Queensland in September. We are thrilled to announce that our speakers include:

  • Petrea King, Founding Director and CEO of the Quest for Life Foundation;
  • Dr Celia Zubrinich, Allergist; and
  • Dr Velencia Soutter, Paediatrician Allergist.

Bookings – Conference and Accommodation

Book your conference tickets online using Eventbrite. Alternatively, offline conference ticking bookings can be made by downloading, completing, saving and emailing this Registration Form to info@mastocytosis.com.au

A great accommodation deal has also been arranged at the Mantra Legend Hotel and the location is ideal for you to feel like you’ve enjoyed a ‘mini- break’ as well! Please download and complete the Reservation Booking Form to apply for discounted conference accomodation.

Speakers

Your Life Matters with Petrea King, Founding Director and CEO of the Quest for Life Foundation

An unexpected diagnosis can stop us in our tracks and cause us to consider how best to embrace the health challenge we face. Sometimes we might look great, but our inner reality doesn’t match our outer appearance. It can be a lonesome and isolating experience when everyone comments on our outer appearance without any enquiry about our inner state.

The greatest gift you can give yourself, your family or your community is the gift of your own good physical, mental, emotional and spiritual wellbeing. There are many practical skills and strategies for living well in difficult circumstances and for building your emotional resilience and sense of wellbeing.

  • Coming to our senses
  • Mindfulness as a foundation of happiness
  • You’re not your body, you have a body!

About Petrea King

Petrea King - Helen Coetzee credit -300PXPetrea King is a qualified naturopath, herbalist, homoeopath, yoga and meditation teacher and counsellor.  After her recovery from acute myeloid leukaemia, Petrea founded the Quest for Life Foundation in 1990, which is situated in Bundanoon, New South Wales, and since then has dedicated herself to encouraging, empowering and educating people living with cancer, neurological and other serious illnesses, or who are suffering from grief, stress or trauma – and for their carers.  She is the bestselling author of eight books, including Quest for Life and Your Life Matters.  She has written three children’s books – You, Me and the Rainbow, Rainbow Kids and The Rainbow Garden. She has recorded a dozen meditation CDs, including the Rainbow Connection CD for children.

Petrea has received many awards for her work, including the Advance Australia Award, the Centenary Medal, Citizen of the Year for 2008 and has been amongst the nominees for Australian of the Year since 2003.  She is a regular guest on ABC national and local radio and has been featured in many television programs.

Griffith University Research Project and Blood Donations

The National Centre for Neuroimmunology and Emerging Disease in conducting a research study to investigate activation markers and proteases in mast cells found that are found in peripheral blood samples.

The aims of this study include:

  • Better understanding of the role mast cells play in Chronic Fatigue Syndrome (CFS) and Mastocytosis.
  • Developing an improved diagnostic method to differentiate between illnesses and overcome misdiagnosis.
  • Providing a less invasive technique for the diagnosis and monitoring mastocytosis.

Chronic fatigue syndrome (CFS) is characterised by unexplained fatigue that may last for more than 6 months and is accompanied by a broad range of other symptoms. CFS and mastocytosis patients can present with similar central nervous system and immunological disturbances. Both illnesses have overlapping clinical presentations such as fatigue, “brain fog”, sensitivity and hyperallergic responses. NCNED has recently detected mast cells in the blood stream of CFS patients, utilising techniques that are far less invasive than the traditional collection of bone barrow. Once blood is collected, mast cells will be isolated from samples and labelled with fluorescent markers to help characterise the expression of receptors that are present throughout the cell. This ability to study mast cells in the blood stream may provide an alternative and less invasive approach to a bone narrow biopsy for diagnosis of mastocytosis. It will also further enable us to examine whether mast cell dysfunction is present in CFS.

Dr Celia Zubrinich FRACP

Dr Celia ZubrinichDr Celia Zubrinich is a Consultant Physician trained in Melbourne, Australia. After obtaining her medical degree from Monash University with First Class Honours, she undertook her resident and registrar years at Box Hill Hospital, Monash Medical Centre, The Alfred Hospital and Austin Health.

She completed specialist training in Respiratory and Sleep Medicine, gaining fellowship of the RACP in 2006. She subsequently undertook a clinical research fellowship at St Michael’s Hospital in Toronto, Canada. She has undertaken dedicated allergy fellowship training at the Alfred Hospital Allergy and Asthma unit and now continues to consult there, as well as in private practice in Fitzroy.

 
Dr Velencia Soutter, Paediatrician Allergist, MBBS FRACP (Paed)

Velencia SoutterDr Velencia Soutter trained as a paediatrician at The Royal Alexandra Hospital in Sydney with the interests in malnutrition, effects of diet on body composition, dietary intolerances and gastroenterology developed during her time overseas working alongside many famous and inspiring researchers at the National Institutes of Health in Maryland and then at Mt Sinai School of Medicine in New York City.

In the 1980’s, the food reaction work concentrated on food intolerance, developed and much expended from concepts already in place in the literature in the 1970’s.  Her interests during that decade were concentrated on research in cystic fibrosis, malnutrition and body composition, so much of the work on food intolerance was done by Rob Loblay and Anne Swain.

With the 90’s came the start of the allergy epidemic that paralleled the obesity epidemic and there was a need to develop skills, knowledge and resources to managing the changing face of the Allergy Clinic. Contrary to popular belief the allergy story has plateaued in this century but now the picture has changed and we are faced with changing patterns of allergen sensitisation because of cultural, migration and geographic influences. None of this change diminishes the need to recognise and understand the patterns of dietary reactions as our food distribution networks narrow and become globalised and more people expect food convenience at minimal cost.

Dr Soutter’s work time is now divided between the former full time practice at Royal Prince Alfred Hospital in Sydney and the practice in Southport on the Gold Coast with Pete Smith. Our understanding of dietary sensitivity and allergy continues to grow but there are still many gaps to fill in our knowledge and this helps to keep a fresh interest in the area.